Impact of after completion therapy assistance on pediatric oncology patients: A study from a tertiary care center from Jammu & Kashmir

Author(s): Faisal R Guru1, Shumail Bashir2, Sadaf Shafi Wani1, Saquib Zaffar Banday1, Syed Nisar Ahmad1, Mohmad Hussain Mir1, Ulfat Ara Wani1, Aiffa Aiman3
1Department of Medical Oncology, Sher-i-Kashmir Institute of Medical Sciences, Srinagar, Jammu and Kashmir, India.
2Department of Chest Medicine, Govt. Medical College, Baramulla, Jammu and Kashmir, India.
3Department of Pathology, Sher-i-Kashmir Institute of Medical Sciences, Srinagar, Jammu and Kashmir, India.
Copyright © Faisal R Guru, Shumail Bashir, Sadaf Shafi Wani, Saquib Zaffar Banday, Syed Nisar Ahmad, Mohmad Hussain Mir, Ulfat Ara Wani, Aiffa Aiman. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

Background: Advances in all fields of oncology have resulted in five-year survival rate approaching 80% among pediatric /AYA survivors which has led to increased focus on psychosocial relationship care, identification of late effects and improving quality of life. For this growing population of cancer survivors with a whole life ahead of them, more concrete support structures have been directed towards the evaluation and improvement of post-treatment care. Medical care complemented with non-medical (psychosocial relationship) care increases awareness with respect to many psychosocial relationship aspects such as educational, employment, post treatment distress and coping which need to be addressed for the survivor to lead a normal productive life. Recent studies have shown that regular psychosocial relationship follow ups have resulted in timely identification of late effects followed by appropriate rehabilitation services being provided to survivors.
Method: The study is based on project PICASSO (partnership in cancer survivorship optimization) initiated by Indian Cancer Society which aims at providing holistic care for childhood cancer survivors. The qualitative analysis was performed by using the quality-of-life scale (WHOQoL-BREF). Non probability purpose sampling pediatric/AYA oncology survivors were taken from the act clinic and potential survivors participated who have completed the treatment till June 2022. (n=100).
Results: The Significant difference is seen between ACT and non-ACT survivors as far as psychological well-being health and physical health domain is considered and insignificant difference is seen as far as social relationship and environment wellbeing is considered.
Conclusion: The Study revealed that ACT survivors have good psychological well-being and physical health then non-ACT survivor.

Keywords: Oncology; physical health; Cancer.